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Introducing Canary
Canary is a centralized community where patients and caregivers can locate the tools they need to manage their health and wellness or a diagnosis. Designed to meet people where they are on their journey
Celebrating our daughter’s survival day
Thirteen years ago today, our family’s life was forever changed by rare disease. Shortly after noon, we found ourselves rushing our healthy four-month old daughter Cambria to the emergency room, deep in the throes of […]
Welcome
Thanks so much for visiting. Use your company’s blog posts to opine on current industry topics, humanize your company, and show how your products and services can help people.
10 ways to launch your advocacy efforts
As a rare disease patient or caregiver, it can sometimes feel overwhelming to entertain the idea of advocacy. Etiam sed est sed odio suscipit blandit in sed lacus. Fusce vehicula nisi nec justo venenatis, ut […]
5 Ways To connect with your Rare Disease community
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How a Planner Can ease the impact of a diagnosis
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